Jamie Heywood


Jamie is the Co-Founder with Ben and Jeff and Chairman of PatientsLikeMe. He is also the Founder and Former CEO of the ALS Therapy Development Institute.

PatientsLikeMe is changing the rules in medical care by giving patients in depth information on outcomes, treatments and symptoms that they can use to make more effective decisions on managing life changing illness.

To accelerate the development of new treatments, Jamie founded ALS TDI in 1999 after his brother Stephen was diagnosed. ALS TDI is the world’s first non-profit biotechnology company and has become widely recognized as one of the most promising and innovative research organizations. ALS TDI implemented an industrialized therapeutic validation process and built a world class discovery program. They were the first organization to run an open research program, posting in real time the results of our studies for patients, doctors, and the research community. Over 100 families have joined with Stephen and Jamie’s family to fund ALS TDI.  Overall during his time as CEO they raised 50 million dollars including the historic discovery partnership in 2007 with Augie’s Quest and the Muscular Dystrophy Association.  He believes ALS TDI is the best non profit investment any patient or family that wants to accelerate effective treatments for ALS can make.

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